20 appointments in 20 days!

Friday’s appointment with Allison’s original neurologist didn’t really produce any answers, but he reviewed all the Mayo results and sent us to the lab for more tests.  So, for the third week in a row, Allison had her blood drawn.  The waiting game continues…

The upcoming weeks are going to be very busy.  Tomorrow is simple: School, appointment to pick up Alli’s glasses at 3:30, on to PT at 4:30, and then hustle back home for dinner before I’m off to the School Board meeting to present MME data.  Tuesday, so far, is just school.  On Wednesday Early On is coming out to the house for a therapy session.  Thursday will be Allison’s first session in pool OT, but it comes after 45 minutes of PT.  We will see how that goes.  It is Friday that I’m worried about.  I will be taking a sick day to take Allison to Grand Rapids and Mary Free Bed for her first set of Baclofen Botox injections (muscle relaxer injections to the specific muscles that need it).  She will have numerous injections in the quads, hamstrings, hips, biceps, and triceps.  I’m glad this appointment is on Friday, so I will have the weekend to assess her and keep an eye on her.  Hopefully she is fine though, because my uncle and his family will be up from Florida for the first time in a couple of years. 

The week of the 31^st will be exhausting.  Monday morning I will be heading to Ann Arbor (again) to see a pediatric surgeon to get a second opinion on the Nissen Fundoplication procedure done in January.  If her reflux is getting up to her nose then the Nissen isn’t doing its job.  I’m going to try to make it back to school for the afternoon so I only have to take half a day sick day, then we are off to physical therapy.  After therapy, we will of course be trick-or-treating.  I have parent teacher conferences with Mason and Morgan’s teachers on Tuesday, as well as my own parent teacher conferences on Tuesday and Thursday.  We have an Early On appointment in there somewhere too.  Then on Friday I have a couple small filling and “gum therapy.”

I can’t remember all the details of the following week, but I know we have three therapy sessions, one swallow study at U of M, and a follow-up appointment with the physiatrist at Mary Free Bed.  I think that concludes our 20 appointments in 20 days. By the time that is all over, it will be Thanksgiving, my birthday, our trip to Ford Field to watch the Lions beat the Vikings, and then it will be practically Christmas.