Back to reality!

So, we've been home for about 24 hours. In that time I've done two sink loads of dishes, three loads of laundry, have one sick kid and a messy house.

I have a lot to accomplish this week: Monday Allison is having a procedure done - so more fasting for another sedation. She is having her GJ tube button replaced with a bigger one - one that will accomodate her growing belly. We should only be at Bronson for half the day. But I have many phone calls to make during that time. I think I will postpone our appointment with her local neurologist because there really isn't too much to tell him until all the results come in. I need to follow-through with some custom seating for Allison, suggested by the rehab doctor at Mary Free Bed. I need to look into why our Mayo trip has not been approved by Children's Special Health Care, because we could really use some mileage and meals and lodging assistance. I also need to look into the Supine Stander - but I might wait until after Allison's OT appointment on Wednesday - I'm sure her therapist might have some ideas how to go about that. Then we see Allison's pediatrician on Friday for a well-child check (which will probably be more about our Mayo trip). We have two football games, one sedated procedure, two therapy sessions, and one appointment. Oh, and I do plan to return to work on Tuesday (staff meeting after school too) after missing six days in a row. I bet I will have at least 10 hours of grading to do. Oh well. Our Mayo trip was a success, and I still feel like we will get the big picture diagnosis in a few weeks. Then we can focus on treatment and recovery.